I’ve been meaning to start this blog for a while now. I recently put a post on Facebook to tell friends about Jude’s condition, and was really amazed and overwhelmed by the responses from people, and the huge sense of comfort that brought to me.
I hope to use this space to document what Jude is doing: his achievements and developments, and how he’s progressing generally. Also as somewhere to write down my day-to-day feelings and have an outlet for those moments that can catch you out, when I might just need to offload. Primarily though, I hope to give others who are going through similar struggles, a sense of comfort. It can sometimes feel like the loneliest place on earth, especially in the beginning after a diagnosis, but it is so important to remember that you are not alone.
I have spent hours scouring the internet reading blogs from mothers with ‘chromo’ or ‘special needs’ children, looking for answers. Trying to find some light at the end of what seems like a very dark tunnel. Trying to build a sense of perspective that is constructive and that gives me hope.
I hope you will find some encouragement from this blog, in the way that I’ve gained strength from reading other people’s stories. Sometimes it helps to be reminded that we are all blessed in our everyday lives and it’s often the little things we overlook that make our lives complete.
I’ve written a detailed explanation of what led us to Jude’s diagnosis (read Jude’s Story So Far) at the top of my homepage.
Thanks for visiting folks, come back soon.
Here’s a recent pic of my little man joining me in our favourite cafe in Sandgate by the sea 🙂